Pat Tallungan is the President and co-founder of the Children’s Neuroblastoma Cancer Foundation (CNCF). CNCF was established in 2000 a year after Pat lost her son, Nick. He was 10 years old. They are committed to finding a cure for neuroblastoma through research funding, education, awareness and advocacy programs.
CNCF has funded over $2.5 million in neuroblastoma research at institutions across the country.
They hold an annual Parent & Caregiver Education conference where neuroblastoma researchers from across the globe present information to the parents and young adult patients about current clinical trials and current research being conducted.
CNCF also includes programs for neuroblastoma survivors to address the unique needs they have and the late effects many of them are stricken with.
They have also provided support to parents who have lost their children. These parents are often isolated from their communities and find it difficult to live a new “normal” after suffering the loss of their child. The program allows them the opportunity to share their experiences and not be afraid to show their emotions and express their grief.
CNCF underwrites many of the expenses for this program as the families are suffering financial hardships dealing with the treatment of their child, late effects issues and complications of the grieving process.
CNCF also provides the families with a Parent Handbook written by parents to help them through the journey of neuroblastoma. It is a great resource for whatever part of the journey the family is on.